Angelman Syndrome Foundation National Walk
THANK YOU for your support of the 2014 ASF National Walk!
Nearly 10,000 individuals participated in this year’s Walk, and the ASF is incredibly grateful for the time and energy that all volunteers and participants put into making this year’s Walk a success. A special thank-you to the Walk Coordinators, listed below, for the thousands of hours of work they did on behalf of the AS community!
Fundraising continues until we reach our $1.2 million National Walk fundraising goal, which enables the ASF to meet the immediate and future needs of the AS community:
- A significant ongoing investment is necessary to continue funding promising research, with the ultimate goal of finding a cure
- Additional and more advanced resources and support services are becoming available and significant funding is needed to bring those services to families in the AS community
To encourage Walkers to fundraise and help achieve the Walk fundraising goal, fundraising incentive prizes were awarded to individuals, not teams, for their individual total amount raised online by June 17, 2014. Participants who raised funds online received one (1) prize from the category of their highest amount raised; prizes were not cumulative.
- $250 (ASF earbuds): 219 achievers
- $500 (ASF hat): 137 achievers
- $1,000 (ASF sweatshirt): 94 achievers
- $2,500 (ASF umbrella): 29 achievers
- $5,000 (ASF blanket): 6 achievers
- $10,000 (all items): 6 achievers
The top five teams that raised the most money online by April 1, 2014 were recognized in the May/June issue of Angelman Today and on the ASF’s social media channels.
A variety of tools and resources to help Walkers raise funds are available this year. Those who were registered walkers have access to the following items through their personal fundraising pages:
- A guide explaining how to navigate and utilize personal fundraising pages.
- Fundraising communication templates including letters, emails and social media posts.
- A guide providing tips on maximizing social media to raise funds and build awareness.
- Share your Walk pictures (or others from your local walk site) or Walk videos on social media to inspire others to donate to support you and the ASF Walk.
- Check your email list and donation list—compare who has given—and make sure to thank those who have already donated. Follow-up with those on your list that have not yet given.
- Ask your employer about matching gifts. Many employers match their employees’ donations to non-profit organizations, and all you have to do is ask!
Your Donations Support
Funds raised from the ASF National Walk support research, educational and informational opportunities, and support programs and resources that enhance the quality of life for individuals with Angelman syndrome and their families.
2014 Walk Coordinators
Thank you for your tireless efforts in making the 2014 Walk a tremendous success!
- Kerry Burden, Alabama
- Peter SanGiovanni, Boston
- Michelle Fontenot, Breaux Bridge
- Kim Prenatt, Buffalo NY
- John Geraghty, Chicago
- Penny Jusko, Cincinnati
- Jennifer Harrison Bull, Columbia SC
- Donna Manhart, Dallas
- Susan Daniel, Danville VA
- Cindy Snyder, Denver
- Justin Grill, Grand Haven MI
- Leah Boice, Hartford CT
- Adrienne Foret, Houston
- Kathy Rokita, Indianapolis
- Grace Samson, Las Vegas
- Iris Faver, Long Island
- Mary Fasang, Los Angeles
- April Roche, Nashville
- Lizzie Sordia, Orlando
- Pam Peppers, Philadelphia
- Amy West, Phoenix
- Corrinna Bisceglia, Pittsburgh
- Crystal Harrison, Puyallup OR
- Tracey Kurihara, Sacramento
- Michelle Gilbert, Salt Lake City
- Susan Ravellette, San Diego
- Elisa Thelan, St. Louis
- Sara Schwarzrock, Twin Cities MN
- Devar Burbage, Washington DC
- Jami Northcutt, Wichita