Meet our TeamBoard Members and Staff

Justin Grill and family
Justin Grill, President
Spring Lake, MI

Justin Grill, President

Justin Grill is a board-certified emergency medicine physician and covers three emergency rooms along Michigan’s…



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Tim Bousum and family
Tim Bousum, Vice President
Ipswich, MA

Tim Bousum, Vice President

Tim Bousum works in specialty sales with AstraZeneca Pharmaceuticals. He and his wife, Maiya Dos,…



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Kathy Rokita and family
Kathy Rokita, Treasurer
Indianapolis, IN

Kathy Rokita, Treasurer

Kathy, a healthcare consultant and CPA, is mother to eight-year-old Teddy, who is diagnosed with…



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Michael Cecere
Michael Cecere, Secretary
Kingston, MA

Michael Cecere, Secretary

Mike Cecere and his wife Lori-an work in the Finance Industry for The Bank of…



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Stormy Chamberlain
Stormy Chamberlain, SAC Chair
Oxford, CT

Stormy Chamberlain, SAC Chair

Stormy Chamberlain, Ph.D., is a widely published, 10-year researcher in the field of Angelman syndrome…



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Dan Harvey, PhD
Dan Harvey, Director
San Diego, CA

Dan Harvey, Director

Dan Harvey was appointed to the ASF Board of Directors in 2012. He became involved…



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Shannon Pruitt and family
Shannon Pruitt, Director
Los Angeles, CA

Shannon Pruitt, Director

Shannon, an entertainment industry executive, and her husband Scott, are parents to six-year-old Emma, who…



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Jim Kubicza
Jim Kubicza, Director
Cheshire, CT

Jim Kubicza, Director

Jim Kubicza and his wife, Jenn reside in Cheshire, CT with their two Children, Lincoln;…



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Kyle Rooney and family
Kyle Rooney, Director
Twin Cities, MN

Kyle Rooney, Director

Kyle Rooney and his wife, Shawna, are proud parents to three young children. Three-year-old twin,…



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Eric Wright
Eric Wright, Director
Louisville, KY

Eric Wright, Director

Eric Wright is a certified professional school counselor and education administrator with more than 20…



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Anna Blanding
Anna Blanding, Director
Hamden, CT

Anna Blanding, Director

Anna Blanding is founder and principal of The Pilliner Group, LLC, a firm providing investment…



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Dr. Rebecca Burdine
Rebecca Burdine, Director
Princeton, NJ

Rebecca Burdine, Director

Dr. Burdine is a parent to a child with Angelman Syndrome. She first served on…



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Lesley McCallister, Director
Charleston, WV

Lesley McCallister, Director

Lesley McCallister is the proud sister of Kate McCullough, who was diagnosed (del +) with…



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Staff

Amanda Moore
Amanda Moore
CEO

Amanda Moore

Amanda Moore became CEO of the the ASF in 2019. Prior to that, she was the Director of Leadership Development,…



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Eileen Braun
Eileen Braun
Director of Operations

Eileen Braun

Eileen Braun is a graduate of Mayo School of Health Related Sciences, Rochester, MN. Prior to her career with ASF…



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Kitty Murphy
Kitty Murphy
Special Events Coordinator

Kitty Murphy

Kitty Murphy comes to the Angelman Syndrome Foundation with over a decade of non-profit event-planning and fundraising experience. Prior to her…



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Elizabeth Jalazo
Elizabeth Jalazo
Clinical Director

Elizabeth Jalazo

Elizabeth is a board certified pediatrician who served on the ASF Board of Directors before becoming becoming Director of Clinical…



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