Financial Planning

It is never too early to begin financial planning for your child’s future. Visit the websites below to begin the process of securing your child’s financial future.

CA Families – IRS Medicaid Waiver Information
Please check with your tax advisor to see if you qualify for a tax credit or refund per the following IRS notice.

Protected Tomorrows, Inc.
Protected Tomorrows, Inc., enhances the lives of people with developmental disabilities through comprehensive life planning. Its nationwide network of Advocates creates Future Care Plans™, which include the educational, residential and financial needs of the individuals. Protected Tomorrows brings peace of mind as it continuously finds progressive solutions to family concerns.

Merrill Lynch
Special Needs Financial Services at Merrill Lynch provides tools and services for clients with disabilities and their families. Our dedicated network of trained financial professionals can help you address the lifetime financial needs of a disabled child or loved one (see “Great Challenges, Greater Achievements”). We also provide communications accessibility tools for clients with hearing or visual impairment as well as medical bill management and claims-filing services for individuals with long-term health-care needs.

MassMutual SpecialCare  (previously MetLife MetDESK)
Planning for the future of your child or other dependent with special needs can be a complicated process. It’s important, however, to plan for their care and continued quality of life when you are no longer around. Trained professionals can help guide you through the process and help you achieve the peace of mind that comes when you know you have planned appropriately.

National Guardianship Association Affiliates by State
Find information about guardianship laws by state. Each state has different laws and procedures for becoming a guardian, government financial benefits, future planning and more.


Financial Assistance

ASF Family Fund
Families apply for funds to assist in gaining access to resources that are needed to improve the quality of life for an individual with Angelman Syndrome.

Joyful Journey Mom
Ultimate list of grants and resources for families with special needs

Go Fund Me
Offers the ability to raise funds. Create a campaign, share it with friends and family and collect donations.

Help Me Fly Inc.
Help Me Fly Inc. was started by the parent of an AS individual. The organization helps families gain access to adaptive equipment that they normally could not have access to without some type of outside help.

Social Security Benefits for Children with Disabilities (2014)
Information for the parents, caregivers or representatives of children younger than age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments. It is also for adults who became disabled in childhood and who might be entitled to Social Security Disability Insurance (SSDI) benefits. Find information about how to apply for benefits, employment programs for young people with disabilities, Medicaid, Medicare and children’s health insurance programs.

Jill Fox Memorial Fund, Inc.
Maryland Residents
The Jill Fox Memorial Fund provides grants to individuals with unmet medical and healthcare needs not paid for by medical insurance, government agencies, health associations, community organizations, public or personal resources.

The Enterline Foundation
Established to provide financial resources to improve the lives of individuals with special needs – who are intellectually disabled and developmentally disabled, The Enterline Foundation is committed to delivering resources to help this under-served and often overlooked part of our community. The Enterline Foundation provides financial support to organizations that in turn provide direct services to adults and children with intellectual and developmental disabilities.

Urban League of Rochester Developmental Disabilities Division
New York residents
The Family Reimbursement Program provides financial assistance to families caring for individuals with developmental disabilities. Funds assist in preventing out-of-home placements and enhance the quality of family life.

The Chatham County Department of Social Services
Chatham County, North Carolina residents
Mission: The Chatham County Department of Social Services will protect vulnerable children and adults; strengthen and preserve families; provide access to health care and better nutrition; and promote economic stability while encouraging personal responsibility.
Adult Services: Provides an array of services and financial assistance so that the aging and developmentally disabled adults can either remain in their homes as long as possible or can reside safely in an appropriate facility.

The Agency for Persons with Disabilities (APD)
Florida (Dade and Monroe counties) residents
The Agency for Persons with Disabilities (APD), in partnership with a Miami dentist opened the Bay Harbor Complete Dentistry, which provides children and adults with developmental disabilities in Dade and Monroe counties who are unable to find dental care. APD eligible individuals, including those on the waiting list for waiver services, may receive cleanings, screenings, x-rays, and other specialized services at reduced cost or with financial assistance. If you live in Dade or Monroe Counties, contact the APD Area 11 office in Miami at 305-349-1478 to make an appointment.

Easter Seals
East Georgia residents
The Champions for Children Program is designed to primarily assist children and families who do not meet the eligibility requirements for the TEFRA/Katie Beckett Medicaid program. The program will provide direct financial assistance and support services for Georgia’s medically fragile and special needs children and their families. An Easter Seals Champions for Children Coordinator will work directly with families to determine eligibility, identify service needs as described by the family and connect them with resources and services. In addition, coordinators will also promote the program and raise awareness of other resources and services in the community. Families of medically fragile and special needs children across Georgia are able to apply for and receive direct financial assistance and support services from the state-wide nonprofit collaborative to help cover the costs of caring for their children at home.

Friends of Disabled Adults & Children
Stone Mountain, Georgia residents
Non-profit organization providing free wheelchairs and home healthcare equipment for the disabled: Other services include ramp building, vehicle lift installation and more.

Alabama Family Trust
Birmingham, GA residents

Many Americans depend upon governmental entitlements such as Medicaid and SSI to provide for their financial needs. Many of these individuals have mental or physical disabilities that substantially limit their major life activities. However, the financial resources provided by Medicaid and SSI are often insufficient to cover the day-to-day living expenses of those that depend upon these programs. This is particularly true of those with disabilities, who must also face the costs of increased medial bills and the need for special medical equipment and supplies. The Alabama Family Trust (AFT) provides trust services for persons with such disabilities. The organization was created by the State of Alabama Legislature in 1994 to encourage, enhance, and foster the provision of medical, social, or other supplemental services for persons with a mental or physical impairment (See Code of Alabama 1975 Chap. 38-9B). The AFT is a 501 (c) (3) general non-profit organization established for the purpose of administering special needs trusts for the disabled.